A special blog!

This blog has nothing to do with our girls. It is about a family in NV who has identical girls who have what they call "childhood alzheimers disease". The actual name is Niemann-pick type C. You may have seen the show "the Doctors" this week and they were on it talking about their story. This disease is fatal, there is no cure. You may be asking yourself why is this important to this family and why am i blogging about it. Well as you may or may not know, we have identical twin girls. But mainly because i have a true passion for people with Alzheimer's disease in the adult, geriatric population. And even though it is not really the same type of disease mechanisms. It seems to affect the body the same way, with the loss in muscle tone, loss of memory, loss of ability to eat, talk, and walk. It takes some very strong parents and girls to wake up everyday not knowing if it is their last one. I am posting a link to their blog and on their blogs they are doing a thing called "Send us a Wish", they are trying to reach a million. So if you have time and feel like reading their story then click the link and send them a wish while you are there.

Addi & Cassi Hempel
http://addiandcassi.com/